The Living Archives on Eugenics in Western Canada is pleased to be sponsoring a celebratory launch for Leilani Muir’s autobiographical book “A Whisper Past” on Saturday May 24th in the Borealis Room on the 4th floor of the Art Gallery of Alberta (AGA), 2 Sir Winston Churchill Square, Edmonton.
Doors at 4:00 pm. Introductions and a reading at 4:30, reception will follow. Appetizers & complimentary non-alcoholic drinks will be served. A cash bar is available from 5 pm – 7 pm.
Copies of Leilani’s book will be available for purchase and Leilani will be signing books.
March 21st is World Down Syndrome Day, and 2014 is the ninth year in which it has been held, and the third in which it has been recognized by the United Nations. I want to start this post with an already-widely viewed video from CoorDown that has been up for less than a week, and step back from there. The video is called “DEAR FUTURE MOM”:
At the time of writing, this video had been viewed over 1.6 million times in 6 days, with over 500 comments on it. It’s clearly designed to be emotional and to directly send a number of messages, including at least these: anxieties about having a child with Down syndrome are understandable but overblown; children with Down syndrome will likely bring much joy and richness to the lives of any family they are in, and particularly to mothers; and Down syndrome does not obliterate or subhumanize the person who has it.
The need for those messages, and perhaps others, to be sent, loud and clear, is grounded in the sad fact that parental fears associated with potentially having a child who will have Down syndrome are amongst the highest risk factors for people with Down syndrome. This is because Continue reading
Continuing the Edmonton Journal’s pursuit of this story–see the early “Death by government” post.
The Edmonton Journal has just run a story, “Fatal Care: Foster Care Tragedies Cloaked in Secrecy”, following a four-year struggle to access government records on the foster care system and deaths in them. According to the report, the number of deaths that occurred amongst children who had been removed from their parents by child protection staff for their own safety is 300% more than the number reported by the government. And a “third of children who die in care are babies, another third are teenagers, and the vast majority are aboriginal.” You can read the article here http://www.edmontonjournal.com/life/Fatal+care+Foster+care+tragedies+cloaked+secrecy/9203131/story.html . There is a lot to absorb in it.
Well, Alberta Eugenics Awareness Week is over for another year. Thanks to all of those who contributed and participated, and to Moyra Lang for pulling it all together. Every event this year was very well attended, and we drew largely non-overlapping audiences for talks on eugenics and indigenous peoples, feminism, childhood, hippies, and more! The world premiere of our “Surviving Eugenics in the 21st-Century: Our Stories Told” drew a full house of over 400 people to the Metro Cinema, and our other evening events, the Friday night screening of “Fixed: The Science / Fiction of Human Enhancement”, and the Tuesday night “Difference and Diversity” performance night, had healthy crowds of just under 100. Thanks to our cosponsors–the Departments of Educational Policy Studies, Philosophy, Sociology, History and Classics, Rehabilitation Medicine, Women’s and Gender Studies, and Human Ecology, as well as the John Dossetor Health Ethics Centre and the Faculty of Native Studies.
We’d like to draw attention to the upcoming visit of Living Archives team member Christine Ferguson to the University of Alberta this week. Chris, who was formerly at the University of Alberta, will give talks on Wednesday and Friday, one as part of a series on Alfred Russel Wallace, the other in the Department of English and Film Studies—details below. Please contact Rob (email@example.com) or Moyra (firstname.lastname@example.org) if you want to meet with her during her week here.
Biography: Christine Ferguson is a Senior Lecturer in English Literature at the University of Glasgow. Her research focuses on late Victorian literature and culture, with an emphasis on the interconnections between science and popular fiction at the fin-de-siècle. Her publications include Determined Spirits: Eugenics, Heredity, and Racial Regeneration in Anglo-American Spiritualist Writing, 1848-1930 (Edinburgh University Press, 2012), Language, Science, and Popular Fiction at the Victorian Fin-de-Siècle: The Brutal Tongue (Ashgate 2006), Continue reading
from Marcy Darnovsky from the Center for Genetics and Society, with whom Living Archives is partnering for this upcoming conference. Please register NOW to avoid disappointment, as we are already more than 2/3 full. —raw
As you probably know, plans are well underway for Future Past: Disability, Eugenics, and Brave New Worlds, the day-long symposium on November 1 at San Francisco State University. It’s shaping up to be a very exciting event!
On behalf of the organizing committee – Emily Beitiks, Rob Wilson, Alex Stern, Milton Reynolds and myself – we really hope you’ll come. Please do register soon, as we’re expecting a full house.
h/t to Ken Bond; from Nathaniel Comfort at the Scientific American blog:
Is eugenics a historical evil poised for a comeback? Or is it a noble but oft-abused concept, finally being done correctly?
Once defined as “the science of human improvement through better breeding,” eugenics has roared back into the headlines in recent weeks in both Mr. Hyde and Dr. Jekyll personae. The close observer may well wonder which will prevail. The snarling Mr. Hyde is the state control over reproduction.
To read the full story:
The Agony and the Ecstacy of Parenting a Child with Intensive Needs
by Dick Sobsey
This post is for parents of children or adults with MECP2 Duplication Syndrome but it is also for all parents of children or adults with intensive needs. It is about how having a child with intensive needs changes our lives so fundamentally… about how challenging and sometimes painful it makes our lives…. but also how it enriches our lives and makes our lives better in some ways. To read more: http://networkedblogs.com/NMw4h
courtesy of Miroslava Chavez-Garcia and from The Modesto Bee:
Female inmates sterilized in California prisons without approval
Published: July 7, 2013 Updated 8 hours ago
An article on the Provincial Training School in Red Deer, Alberta, aka the Michener Centre, has just appeared on Wikipedia. It is based on work that Mona Horvatic did as a student in Philosophy 217 (Biology, Society, and Values) in Winter 2011, with additional work to bring it to completion being undertaken by Andrew Ball as a summer RA for Living Archives. This will be the first in a series of Wikipedia articles on Canadian eugenics to finally make their way onto Wikipedia, joining about 10 others already there. So, if it keeps raining where ever you are for YOUR summer, you’ll have something to read …
Well, at last, here it is. Watch, enjoy, share, like.
At the Alberta Literary Awards last night, the play The Invisible Child received the Gwen Pharis Ringwood Award for outstanding play. The play was written by David Cheoros, Lou Morin, and Leilani Muir (O’Malley), and was performed at last year’s Edmonton International Fringe Festival. A special reading of the play was given at the Living Archives team meeting in October 2012, and footage of both performances features in the Alberta Eugenics Awareness Week highlights video, which will be released later this week. Congratulations to the team that wrote and performed Invisible Child on this well-deserved honour!
Just a quick reminder:
Professor Rob Sparrow will be giving two talks in Edmonton at the University of Alberta on Monday April 8 and Tuesday April 9, 2013. Both talks are open to the public and free! Talks are being held on campus in ETLC (Engineering Teaching & Learning Complex) Continue reading
In November, I posted on the Australian Senate Inquiry into the forced sterilization of women and girls with disabilities. Women With Disabilities Australia (WWDA) has just made its powerful, eye-opening submission to the Inquiry. And there’s something you can do, pronto, that may make a difference here: endorse or support the submission. Anyone who thinks that forced sterilization is a “thing of the past” shoudl read this submission. First, from the submission (p.20),
There is a historical precedent in several countries including for example the USA (until the 1950s), in Canada and Sweden (until the 1970s), and Japan (until 1996) indicating that torture of women and girls with disabilities by sterilisation occurred on a collective scale – that is, mass forced sterilisation. This policy was rationalised by a pseudo-scientific theory called eugenics – the aim being the eradication of a wide range of social problems by preventing those with ‘physical, mental or social problems’ from reproducing. Although eugenic policies have now been erased from legal statutes in most countries, vestiges still remain within some areas of the legal and medical establishments and within the attitudes of some sectors of the community:
“Disabled people should not have babies.” Continue reading
In San Francisco, a group of Facing History and Ourselves students is spearheading a movement that could change public high school history classes for generations of future California teens. Their goal: to include California’s history with eugenics and sterilization in the state’s public high school curricula. To read more, see the original post.