Thanks to Velvet Martin for posting a link to the following video from CDO; her daughter Samantha features. What do people think of the message here? Community building around chromosomal disorder? A humanization of the dehumanized who “look kinda funny”? A tacit complicity with the medicalization of human variation (via the notion of “disorder”)? All of the above? Something else?
Can you imagine a version of this video labeled not in terms of chromosomal variation (duplications, deletions, rings), but in terms of the facial and body features that result–long face, bigger nose, displaced cheekbones? Or psychological characteristics, or other functional variations (can do this, can’t do this)? What difference would that make to the questions above, if any?