We Were Children

If you missed the recent broadcast of We Were Children you can still watch the full movie online. It will be available for viewing until April 23.

We Were Children

We Were Children is a 2012 Canadian documentary film about the experiences of First Nations children in the Canadian Indian residential school system. Produced by the National Film Board of Canada. For over 130 years, Canada’s First Nations children were legally required to attend Government-funded schools run by various orders of the Christian faith. ‘We Were Children’ is based on the testimony of two survivors.

A 24 hour Indian Residential Schools Crisis Line is posted at the beginning of the film offering assistant to anyone who is distressed by the broadcast: 1-866-925-4419

The film was shot in Manitoba, in Winnipeg, St-Pierre-Jolys and at the former Portage residential school, now the Rufus Prince building, in Portage la Prairie. It was produced by Kyle Irving for Eagle Vision, Loren Mawhinney for eOne Television, and produced and executive produced by David Christensen for the National Film Board of Canada. The executive producer for the Eagle Vision was Lisa Meeches, whose parents and older siblings were sent to residential schools.

Meeches, who spent over seven years travelling across Canada to collect residential school survivors’ stories for the Government of Canada, has stated that the idea for the film originated from a discussion she’d had at the Banff World Media Festival.[6] It was Meeches who approached director Wolochatiuk with the project. CBC Manitoba reporter Sheila North Wilson assisted the production by translating material in the script from English to Cree.
We Were Children premiered on October 2, 2012 at the Vancouver International Film Festival, followed by a screening at the imagineNATIVE Film + Media Arts Festival in Toronto on October 18. It was broadcast on the Aboriginal Peoples Television Network in March 2013, followed by a DVD release from the National Film Board of Canada on April 12, 2013. (background information taken from the wikipedia article written on the film).

Today, March 27, 2014 the Truth and Reconciliation Commission of Canada begins hearings at the Shaw Conference Centre. The hearings are open to the public and attendance is encouraged. As the TRC Mandate (1998) stated, it is not only the sincere “acknowledgement of the injustices and harms experienced by Aboriginal people” but also the community’s step for “continued healing” and “[paving] [of] the way for reconciliation” that is the overall aim of testimonies through the the context of the TRC.

The program for the TRC in Edmonton can be found here:http://www.trc.ca/websites/alberta/index.php?p=766

NO REGISTRATION NEEDED TO ATTEND.
Those wishing to provide a statement to the Commission may register onsite during the event.

CAN’T COME? The Alberta National Event will be livestreamed at http://www.trc.ca.

Truth & Reconciliation Commission – Edmonton March 27 – 30, 2014

For 116 years, thousands of Aboriginal children in Alberta were sent to Indian Residential Schools funded by the federal government and run by the churches. They were taken from their families and communities in order to be stripped of language, cultural identity and traditions.

Canada’s attempt to wipe out Aboriginal cultures failed. But it left an urgent need for reconciliation between Aboriginal and non-Aboriginal peoples.

There were more Indian Residential Schools in Alberta than in any other province. The Truth & Reconciliation Commission of Canada (TRC) is holding its Alberta National Event in Edmonton this year.

Come and share your truth about the schools and their legacy. Witness and celebrate the resilience of Aboriginal cultures.
(excerpt from TRC.ca)

Alberta National Event – March 27 – 30, 2014 will be held in Edmonton at the Shaw Conference Centre 9797 Jasper Avenue. No registration needed to attend. Those wishing to provide a statement to the Commission may register onsite during the event.

You can download the program click here

On Thursday March 20 from 3:00 pm – 5:00 pm at the University of Alberta, Lister Centre, Maple Leaf Room
Understanding the TRC: Exploring Reconciliation, Intergenerational Trauma, and Indigenous Resistance featuring:

Commissioner Dr. Wilton Littlechild
Dr. Rebecca Sockbeson
Dr. Ian Mosby
James Daschuk
Dr. Keavy Martin
Tanya Kappo
Moderated by Jodi Stonehouse

Reception 5:00 pm – 6:00 pm – Tea, bannock and berries. Event is free.

Gala Reading featuring:
Marilyn Dumont
Daniel Heath Justice
Eden Robinson
Gregory Scofield
Anna Marie Sewell
Richard Van Camp

Friday, March 21 from 7:30 pm – 9:30 pm in Humanities Centre L-1 (111th Street and Saskatchewan Drive)
Giveaways. Books for sale. Free Admission

You find this information and links to campus maps here

Edmonton to host national residential schools truth and reconciliation event

On January 20th in the Edmonton Journal, Willie Littlechild announced that that the TRC will be in Edmonton this March. Here is the article with a few more details.

Edmonton will host the final national event in March for the Truth and Reconciliation Commission dealing with Canada’s residential schools legacy.

The March 27-30 event, open to the public at the Shaw Conference Centre, is expected to attract up to 4,000 people a day to learn about the history of the schools, talk about their experiences and take part in cultural activities.

“It’s almost the start of reconciliation … It’s not the end of it,” commissioner Willie Littlechild told the city’s community services committee Monday.

Alberta had about 25 residential schools, more than any other province. They operated in Canada from the 1870s to 1996, Littlechild said.

There are about 12,000 survivors living in the province, the largest proportion of them in Edmonton, he said.

“It’s an opportunity to many to begin their healing journey,” said the former Conservative MP, who spent more than a decade in the residential school system.

“Every citizen of Canada is affected by this history.”

The committee recommended Edmonton contribute $250,000 in cash and services to the event’s $2-million budget, which city council will vote on next week.

The city, which put in a bid about three years ago, was chosen as host for the Alberta national event over Calgary, Medicine Hat, Lethbridge and Grande Prairie, Littlechild said.

Mayor Don Iveson called it an “extraordinary opportunity” to hear about aboriginal history and begin the process of reconciliation.

The six other Canadian cities that hosted the previous national events contributed to their cost, he said.

“This is really a once-in-a-lifetime opportunity. It arises from some fairly horrific historical circumstances; however, this is about learning from that and where we go as a community,” he said.

“We still have a phenomenal amount of work to do. This is a step. It may be symbolic, but sometimes symbolism is very, very important.”

About 150,000 aboriginal children were sent by the federal government over decades to church-run schools, where many faced physical and sexual abuse.

A lawsuit against the federal government and churches resulted in a settlement that included payments to those affected and creation of the commission in 2008.

Its job is to hold public hearings so people can tell their stories, collect records and establish a national research centre.

gkent@edmontonjournal.com

Restrictive laws silences grieving parents

Publication ban prohibits naming deceased children, shields Alberta government from scrutiny.
Alberta’s ban on publicizing the names and photos of children who die in provincial care is one of the most restrictive in the country, robbing grieving families of their ability to raise concerns in public about the deaths and sheltering government officials from scrutiny.

About 10 children die in care in Alberta every year, but because of a law that prevents their names and photographs — and those of parents or guardians — from being publicized, the public is denied the right to know who they are and assess whether their deaths could have been prevented.

Basic information about the 145 children who died in care in Alberta between 1999 and 2013 was only released to the Edmonton Journal and Calgary Herald after a four-year legal battle. Still, we can only tell you the names of two of the 145. That’s because their parents applied in court to have the publication ban lifted — a step all parents must take if they wish to speak out about the deaths of their children.

Velvet Martin, who went through the court process, said the ban is evil and “the nemesis of justice.”

“They have failed the child in the utmost way possible and now they are stealing their identity — the only thing they have left,” said Martin, whose daughter Samantha died after being in care. “It’s bad enough to lose a child, but to have it covered up is just wrong and I won’t stand for it.”

With scant information on child death cases, Albertans are left to trust that the government will investigate and correct any systemic problems, yet often the same people responsible for supervising a case lead the review.

The result of the legislation is a blanket of confidentiality over the child welfare system.

Child welfare agencies won’t talk to the media. Several didn’t respond to repeated requests for information about how they protect children and one, citing the province’s privacy act, referred calls to the Ministry of Human Services.

People who work inside the system are barred from speaking publicly about their experiences; even those who spoke on condition of anonymity were afraid they’d lose their jobs.

Government officials argue the ban is necessary to protect the privacy of children and their families; in some cases, a child who dies might have siblings who are also in government care. Children in care are some of the province’s most vulnerable citizens, and provincial authorities feel strongly about trying to protect them.

“I think there is always a balance of values that you have to take into account,” said Human Services Minister Dave Hancock. “One of the values obviously is an open and transparent process so that people can know and understand what is happening and know that things are being handled in an appropriate fashion. The other value is you don’t want to intrude in the personal lives of families any more than necessary, particularly in circumstances like that where they have already suffered significant tragedy.”

In a press conference on Wednesday, in response to the Journal-Herald investigation, Hancock said that the issue of where that line should be drawn will be discussed at a roundtable of MLAs and experts scheduled for January. Hancock announced the roundtable on Tuesday.

The Alberta College of Social Workers supports the principle of the ban for the benefit of the family and any siblings.

“It could cause some definite hardship for the family,” said spokeswoman Lori Sigurdson. “They could be ostracized in the community. It could be a shame thing. Their relationship with the ministry and the worker who is working with them could become antagonistic or more difficult because they feel they have betrayed them.”

Hancock said the bodies that review deaths — including the child and youth advocate, the quality assurance council and the fatality inquiry review board — provide the public with appropriate access to information. He said it’s “not necessarily useful to publish a name and face just for the prurient interest of the opposition or others.”

However, in an interview this month, Hancock admitted he didn’t realize the law went so far as to prohibit parents from talking about their children and releasing their names to the media, and said he would look into it.

“I think families for the most part need to be able to heal and need to have the discussions that they need to heal,” he said.

That’s the argument made by the family of a 21-month-old aboriginal baby who died in a foster home in 2010.

“It is ridiculous. We want to tell our story and we can’t,” the girl’s aunt said. “We’re suffering in silence here.”

A Morinville foster mother has been charged with second-degree murder, but the case has not yet gone to trial. It could be years before the facts of the case and what went wrong are revealed — if ever.

Choking back tears, the aunt said problems with the system must be scrutinized if similar deaths are to be avoided. “Every couple of years, another child is dying in care, and it is usually a native kid,” she said.

Martin, the mother who had the ban lifted on her daughter’s name, said almost every family she has met wants to speak out, but they often don’t know their rights and can’t afford to seek legal advice.

“A lot of people don’t have the fortitude, they don’t have the education, the ability, to come forward,” said Martin, a spokeswoman for a national advocacy group called Protecting Canadian Children.

In her case, she was able to lobby for a fatality inquiry. During that process, she found out that while Samantha’s caseworker had assured her that the girl — who had a number of medical conditions — was getting exceptional care, the caseworker hadn’t seen her for 14 months, nor had she been examined by a doctor in three years.

“I was naive and under the impression that children’s services was doing an internal investigation and were actually going to do something other than cover their ass,” she said. “It was a hard lesson for me.”

Like Martin, Jamie Sullivan went to court to lift the ban on her daughter Delonna’s name — but she’s angry she had to. “If you want to arrest me for talking about my daughter, then arrest me,” she said. “You can’t take anything more from me than you have already. … And I’m not going to have somebody telling me I can’t show her picture. That’s just not right.”

The publication ban law is part of Alberta’s Child, Youth and Family Enhancement Act. It stipulates that “no person shall publish the name or a photograph of a child or of the child’s parent or guardian in a manner that reveals that the child is receiving or has received intervention services.” The penalty is a maximum $10,000 fine or up to six months in jail.

Prior to legislative changes in 2004, the ban didn’t exist. A 13-member task force, chaired by Calgary MLA Harvey Cenaiko and made up entirely of Conservative MLAs and child welfare officials, had recommended the change to government. Cenaiko told MLAs the new provisions were drafted to align with the Freedom of Information and Protection of Privacy Act. No mention was made that the ban remained in place after a child died.

Provincial privacy commissioner Jill Clayton, who wasn’t in office when the law was amended, said she can’t find any record of the government consulting the office for advice or guidance on the issue.

Across Canada, most provinces ban the publication of names of children who are in care or receiving services from the government, but lift the ban or decline to enforce it when one of those children die. Only Nova Scotia, New Brunswick and Quebec have bans similar to Alberta’s, and officials say Quebec currently does not enforce the ban when a child dies.

But in Alberta, despite the minister’s promise to review the ban, the government continues to enforce it.

This month, Alberta’s children services director refused a request from the Journal and Herald to lift the ban on the name of a Samson Cree baby, opposing an application that was supported with affidavits from both the child’s parents.

Being able to publish the names, photographs and personal stories of children who die in care are large factors in bringing about change, experts say. If parents are muzzled, there is no one else to speak for the children, said Robert Fellmeth, executive director of the Children’s Advocacy Institute in the U.S.

“These children have no lobby,” said Fellmouth, a professor of public interest law at the University of San Diego. “They have no campaign contributions. They don’t vote. Their sole asset is democracy, and public sympathy and concern, and disclosure. That’s the sole political card they have.”

Many laws to protect children are named after child victims, he noted. The Amber Alert system was named for Amber Hagerman, a nine-year-old abducted and murdered in Arlington, Texas, in 1996, while Chelsea’s Law in California, which increases penalties and monitoring of sexual offenders, was named after 17-year-old rape-murder victim Chelsea King.

In Canada, there’s the Jordan Principle that stipulates that care be provided for children when they need it and decisions about who is responsible for paying for it be made later. It is named after a five-year-old Manitoba Cree child named Jordan River Anderson, who died in hospital while federal and provincial authorities bickered over who was responsible for his home care.

And in other provinces, the deaths of children in care make headlines. In Manitoba, a public inquiry has put the 2005 death of five-year-old Phoenix Sinclair under the microscope; in Saskatchewan, RCMP are investigating the alleged 2013 murder of six-year-old Lee Bonneau by another child under the age of 12; and in Ontario, an inquiry has been probing the case of five-year-old Jeffrey Baldwin, who died in 2002 after years of mistreatment.

By comparison, in Alberta, when the child and youth advocate writes reports about flaws in the system, he has to make up names for the children. In July, he released “Remembering Brian,” and just last week he issued “Kamil: An Immigrant Youth’s Struggle.” Both are pseudonyms.

Even when a death of a child in care is examined at a fatality inquiry in Alberta, the children and parents are identified only by initials. Provincial court Judge Leonard Mandamin balked at this practice in an August 2007 fatality inquiry report into the suicide of a 16-year-old Tsuu T’ina boy. “The use of initials dehumanizes the tragic death of this young person,” he wrote.

University of Manitoba professor Arthur Schafer, director of the Centre for Professional and Applied Ethics, wonders who the publication law is designed to protect.

“My overarching concern is that privacy is being used as a smokescreen to conceal potential wrongdoing and to prevent the public from getting an accurate picture of problems that may turn out to be systemic,” he said. “Privacy considerations are important, but they aren’t absolute.”

Publication bans by province

British Columbia: The name and photo of a child who dies in care can be published provided information comes from family or other sources.

Alberta: It is illegal to publish names or photos of children who die in care without a court order lifting the ban.

Saskatchewan: The name and photo of a child who dies in care can be published provided information comes from family.

Manitoba: The name and photo of a child who dies in care can be published provided information comes from family.

Ontario: The name and photo of a child who dies in care can be published without restriction.

Quebec: It is illegal to publish the name and photo of a child who dies in care, but the law is not enforced.

New Brunswick: It is illegal to publish the name of a child who dies in care.

Nova Scotia: It is illegal to publish the name of a child who dies in care.

Prince Edward Island: The name and photo of a child who dies in care can be published.

Newfoundland and Labrador: The name and photo of a child who dies in care can be published if information comes from family or other sources.

BY DARCY HENTON AND KAREN KLEISS, CALGARY HERALD AND EDMONTON JOURNAL

Story can be found online here: http://www.edmontonjournal.com/news/Restrictive+silences+grieving+parents/9221675/story.html

Irish government to pay survivors of Magdalene laundries

Ireland’s eugenics program: It was slave labour in the twentieth century. For almost 200 years, thousands of women and young girls, judged to be “fallen women”, were sent to live in Catholic institutions throughout Ireland. Some were sent to the “asylums” …sounds similar to Alberta Eugenics program?
Today, the Irish government announced it will pay survivors 11,500 Euros to women who spent three months or less in a laundry and up to a maximum of 100,000 Euros for ten years or more.
The full article can be found here: http://globalnews.ca/news/674185/irish-government-to-pay-survivors-of-magdalene-laundries/

Forced Sterilization of Women and Girls with Disabilities in Australia: The WWDA submission

In November, I posted on the Australian Senate Inquiry into the forced sterilization of women and girls with disabilities.  Women With Disabilities Australia (WWDA) has just made its powerful, eye-opening submission to the Inquiry.  And there’s something you can do, pronto, that may make a difference here: endorse or support the submission.  Anyone who thinks that forced sterilization is a “thing of the past” shoudl read this submission.  First, from the submission (p.20),

There is a historical precedent in several countries including for example the USA (until the 1950s), in Canada and Sweden (until the 1970s), and Japan (until 1996) indicating that torture of women and girls with disabilities by sterilisation occurred on a collective scale – that is, mass forced sterilisation. This policy was rationalised by a pseudo-scientific theory called eugenics – the aim being the eradication of a wide range of social problems by preventing those with ‘physical, mental or social problems’ from reproducing.  Although eugenic policies have now been erased from legal statutes in most countries, vestiges still remain within some areas of the legal and medical establishments and within the attitudes of some sectors of the community:

Contemporary practices of sterilization in Australia

As a follow up to the post in the first link below, here is a list of further related links on those wanting to know more.  Thanks to a helpful anonymous reader of the What Sorts blog who provided most of the links below but who doesn’t wish to be identified.  Folks in Oz: let us know if you have more information, are undertaking action, whatever.

Parent Bullies: Homophobic Parents Protest Making Schools Safe for ‘Gay’ Kids

The Anoka-Hennepin Independent School District 11, located just north of Minneapolis, changed its policy of neutrality regarding questions of sexual orientation in favour of active affirmation of the dignity of all students regardless of their race, disability, or sexual orientation.  The New York Times reports:

 In response to conflicting pressures, Anoka-Hennepin officials had devised an unusual policy, directing teachers to remain neutral on any questions involving sexual orientation. But some teachers said that this hampered their ability to support gay students and that the overall climate was still hostile.  Last month, the district rescinded the neutrality policy in favor of a requirement to “affirm the dignity and self-worth of students” regardless of race, sexual orientation, disabilities or other factors. In addition, according to the new agreement, the district will strengthen measures to prevent, detect and punish bullying based on gender or sexual orientation, hire a full-time “harassment-prevention” official, bolster mental health counseling and identify harassment “hot spots” on the campuses of middle and high schools.

However, the Anoka-Hennepin Parents Action League (see their website here) complained that  “[m]aking schools safe for ‘gay’ kids means indoctrinating impressionable, young minds with homosexual propaganda” (see The New York Times).  The Parents Action League website states that

Teaching about sexual orientation is not a part of the District adopted curriculum; rather, such matters are best addressed within individual family homes, churches, or community organizations.

Two things are quite striking here and both are examples of narrow-minded groups making students worse off by making themselves vocal.  First, and most obviously, the reported statement that “[m]aking schools safe for ‘gay’ kids means indoctrinating impressionable, young minds with homosexual propaganda” is outrageous in itself especially since it implies that what I take to mean the majority (that is, the heterosexual kids) are better served if ‘gay’ kids are not protected from bullying.  I am not sure whether the parents who agreed on such a formulation in their e-mail were appealing to some seriously misguided utilitarian calculation or whether they were just expressing their support for bullying based on sexual orientation?  Either way, the statement represents an unusually ugly thought!

Second, the statement on the Parents Action League website is a further testament to the dangers of giving narrow minded and aggressively fearful groups power over the education of future generations.  Statements like: “[t]eaching about sexual orientation is not a part of the District adopted curriculum; rather, such matters are best addressed within individual family homes, churches, or community organizations” is reminiscent of burning the “Satanic” Harry Potter Books (see the 2001 BBC News Story).  All such practices will do (practices of withdrawing educational content from the curriculum and relegating it to the home), and I imagine that this is the hope of the Parents Action League, is to perpetuate discrimination based on sexual orientation precisely because homophobic parents seem to want to shield their children from any statements that confer dignity and self-worth upon homosexual students.

Parents should certainly play a greater supportive role in their children’s education.  Having had teaching experience at the secondary education level, I have seen my share of too much resentment toward teachers for the low achievement of their child and too little active participation in the child’s education.  Of course, this is not descriptive of all, or even most, parents.  However, participation in a child’s education should not come in the form of lobbying to truncate the educational experience of students.  If schools are to teach only the core subjects (math, social, science, and english), and remain silent (since being neutral in this context just means staying silent) on all other issues, then the quality of citizens leaving the school system will be poor indeed.

Fortunately, the Anoka-Hennepin Independent School District 11 went ahead with its new policy.  Perhaps once they eradicate bullying based on sexual orientation in their hallways, they will start to fight the source of bullying, namely the opinions and beliefs of homophobic parents!

Abuse Claimed by Ex-Students of The W. Ross MacDonald School for the Blind

In yet another example of alleged abuse of vulnerable populations in residential schools, this Chronicle-Journal article describes a class-action law suit filed against the Ontario government on the grounds of negligence and breaches of fiduciary duties by the school staff.

Robert Seed, 64, is the representative plaintiff in the class-action lawsuit, which claims the staff at the W. Ross MacDonald School for the Blind, in Brantford, Ont., bullied, humiliated and abused — mentally and physically — the plaintiffs in the 1950s and 1960s. The lawsuit is still in its early stages. The claim was filed at Superior Court in Toronto last month.

Continue reading

The Importance of Being Innocent: Why We Worry About Children

 

Joanne Faulkner's new book

The Importance of Being Innocenct: Why We Worry About Children

Joanne Faulkner’s recently published book on childhood, The Importance of Being Innocent, was the topic of an Australian Broadcasting Corporation talk show segment today. You can here the interview here; here is the url directly:

http://mpegmedia.abc.net.au/rn/podcast/2011/02/lms_20110224_0919.mp3

A chunk of the book can be read at the Cambridge UP website:

http://www.cambridge.org/aus/catalogue/catalogue.asp?isbn=9780521146975

Dr. Faulkner is a member of the Living Archives on Eugenics in Western Canada team.  She is currently a postdoctoral fellow in philosophy at the University of New South Wales, and formerly held a Killam Postdoctoral Fellowship at the University of Alberta.

 

Mourning Dove at the Catalyst

MOURNING DOVE

Catalyst Theatre is pleased to be the venue for Kill Your Television’s presentation of Mourning Dove

by Emil Sher, running from May 13 to the 22.

Could there ever be a justification for taking a child’s life?  Edmonton’s critically acclaimed, multi-Sterling Award winning independent theatre collective, Kill Your Television will present the Western Canadian premiere of Mourning Dove by Emil Sher. Based on an award-winning radio play and inspired by ‘the Robert Latimer case’ – a true Canadian story – Mourning Dove explores the unspeakable dilemma faced by Doug and Sandra Ramsay, parents of a severely disabled girl who lives a life of pain and agony. Doug is not convinced her next operation, described as a “salvage procedure”, will make a difference, but Sandra, believes it’s their only choice. When Doug takes matters – and his daughters life – into his own hands, worlds are shattered and no one is prepared for the fallout. Mourning Dove asks difficult questions about mercy killing, familial loyalty and personal ethics versus public morality. Controversial and challenging, Mourning Dove is presented by Kill Your Television. Winner of the Sterling Award for Outstanding Independent Theatre 2001, 2002, 2003, 2006.
Featuring: Michael Peng, Nadien Chu, Nathan Cuckow, and Naomi Gaertner
Production Designer: Kerem Cetinel
Stage manager: Jenn Best
Director: Kevin Sutley
Tues-Saturday, 8pm  Sunday matinee at 2pm
Tickets $25, Student/Senior $17
2 Tickets for $20 (Tuesday May 18th)
Tickets available at Tix on the Square (780-420-1750)

Tracking Chromosomes, Castrating Dwarves

This is the title of a new paper by distinguished historian of eugenics, Paul Lombardo, available for download via SSRN here that recently appeared in the journal Ethics and Medicine. The paper focuses on Charles Davenport, who became the Director of the Cold Spring Harbor Laboratory in 1910 and immediate set up the Eugenics Records Office there later that year. It was to become a major institutional force in the development of North American eugenics. While the paper concerns a small episode in the history of eugenics from 1929, what it says about consent, medical intervention, and disability will ring bells for regular readers of this blog. The abstract of the paper reads: Continue reading

Kaylee Wallace: Disturbing Coverage and Unasked Questions

Many of you in Canada at least, like many of us in Canada, will have been following the deeply disturbing story of “Baby Kaylee”, which has been the lead story on CBC’s The National for the past three nights. The ever-perceptive folks at Not Dead Yet have posted the following probing blog on the story, and the story of the story, which should be of interest for those who know and don’t know about either. Below is a taster of the post, which you can get in full from the Not Dead Yet blog itself.

There are so many disturbing and tragic aspects of this case itself (though not quite those that the CBC and other major outlets for news have highlighted), and in how it has been picked up and covered, that it might be hard to know where to start. Well, by reading on, for a start:

Once in awhile, a story hits the news that is so heartwrenching and tragic that it seems rude and cold to ask questions – let alone challenge – elements of the story. Often, this is exactly the time that hard questions should be asked.

Right now, there is a life-and-death drama playing out at the Sick Children’s Hospital in Toronto. Kaylee Wallace, who is two months old, is receiving palliative care at the facility. On Tuesday, there was an attempt to harvest her organs under the “Donation after Cardiac Death” (DCD) or “Non-Heart Beating Donation” (NHBD) protocol. In this protocol, an individual’s organs are harvested soon after the heart has stopped beating. The organ harvesting is called off if too much time elapses between removal of a ventilator and stoppage of the heart.

On Tuesday, Kaylee continued to breathe after being taken off a ventilator. The problem was that she stayed awake – since her breathing only stops when she sleeps. (If you think you know a name for that condition, read on)

Many

Think Differently About Autism

From the National Autistic Society, in the UK, a short video on bullying, Asperger Syndrome, and what it’s like; h/t to Asperger Square 8. The video forms part of the NAS’s I Exist and Think Differently about Autism campaigns, which have been ongoing for the past year or so.

Description of video, partial transcript, and further information and links beneath the fold. Continue reading

Aktion T4 installation and film project

Some of you may know this already, so apologies for cross-posting. Liz Crow, a British filmmaker, has been engaged in putting together a commemorative and interactive installation chronicling Aktion Tiergartenstrasse 4, an extermination plan enacted in 1939 by the Nazi’s with the goal of eliminating people with disabilities from a society that sought Aryan perfection. Aktion T4 became the ‘successful’ blueprint for extermination camps with a broader mandate as the war progressed. In this clip–which is captioned in English, with spoken English as well–Liz Crow outlines the project and the film she’s working on.

You can also see more at the Roaring Girl Productions website, including a 3-D tour of what the installation will look like.

Saving the World with Viral Eugenics

Randall Gordon, a character from Paul Chadwick's Concrete series, points his finger at the audience a la Uncle Sam with the following speech bubble "I'm completely serious, and I repeat my appeal. You, out there. Somewhere. Sexually transmitted; no undue harm; infertility. Go save the world.

Randall Gordon, a character from Paul Chadwick's Concrete series, points his finger at YOU, a la Uncle Sam, with the following speech bubble: "I'm completely serious, and I repeat my appeal. You, out there. Somewhere. Sexually transmitted; no undue harm; infertility. Go save the world."

And so a tale already fraught with controversy unleashes an ethical bombshell… Continue reading

Kuru, pedophilia, and white-washing science

Evolving Thoughts has an interesting recent post on recently deceased Nobel laureate Carleton Gadjusek, who not only discovered significant things about the transmissability of kuru, aka Creutzfeldt-Jakob disease, but was also a convicted (and seemingly unabashed) pedophile. The hairy gorilla of a blogger at Evolving Thoughts (aka John S. Wilkins), prompted by an obituary of Gadjusek that, understandably, doesn’t make Gadjusek’s pedophilia its focus, offers us the following:

Gadjusek was a moral deviant who harmed children (almost necessarily if he had sex with boys). He also discovered a transmissible dementia that has ultimately changed our way of thinking about neurological diseases and the very nature of disease itself. Like the founder of vascular surgery, Alexis Carrel, who worked with the Nazis in eugenic extermination, his work was good even if he was not. Continue reading