Marwencol

 

I went to see the film Marwencol last night at the Metro Cinema; if you’re in Edmonton, you can catch it Sunday and Monday nights at either 7 or 9pm.  And if you are in St. Elsewhere, check it out when it does the rounds.  It is breath-takingly good.

 

The one sentence reason why?  Marwencol avoids freakification, sensationalism, and victimization in telling a powerful story that invites all three.

 

Brain Injury Dialogues

Received this from an email list I’m on and thought some might be interested.

Marc

Hello,

Brain Injury Dialogues is an engaging documentary that  was written and co directed by me, a brain injury survivor of 18 years, and my friend, veteran filmmaker Lyell Davies, who is on the faculty of the City University of New York.

We have priced our documentary at $25, making it easily affordable for virtually any library, media center, or as an instructional aid.

Public performance rights are included with our price.

Brain Injury Dialogues reveals many invisible aspects of this hidden disability; viewers see the wide range of deficits that survivors must face, both physically and mentally, and learn how no two brain injuries are ever alike.

Continue reading

Samantha, Loss and Ableism

[This post is the thirteenth in our series of Thinking in Action posts, the series being devoted initially at least to discussion of talks at the Cognitive Disability conference in NYC in September; this one takes up another concrete example concerning conference-themes, but not a conference talk. You can go to the Thinking in Action 10 pack, which links to the first 10 posts in the series; the posts run Tuesdays and Fridays, for the most part, and the series will wind up shortly. The posts immediately before this one concerned talks by Ian Hacking and Victoria McGeer on theory of mind and autism and Licia Carlson on moral authority].


I would like to raise some questions around the issue of whether Samantha is an ableist (for background, see the original post The son that Trent can never be …). While it is true that Samantha’s trip to China brought up feelings of loss about her son’s brain injury, she evidently feels guilty about those feelings of loss. What she said to Rob makes clear that she wants to value and appreciate her son the way he is. Indeed, her guilt about her sense of loss seems to stem precisely from the fact that she is committed to valuing her disabled son. In other words, her guilt seems to stem from anti-ableist commitments. For those who don’t want to go back to the original post, and the comments on it that have prompted this post, here’s the crucial bit of what she said about her brain-injured son Trent:

I found it rather hard to be around a baby boy who reminded me so much of Trent’s babyhood. It brought up a lot of feelings about Trent, and about the son that Trent can never be now. Maybe I still need to mourn the Trent that is now gone, but I feel guilty about mourning him, because he’s not dead. I guess I feel like if I mourn him it must mean that I don’t love and appreciate him enough the way he is now. I’m not quite sure what to do with all those feelings, but being around a baby boy sure brought them up. It’s going to be hard in some ways, I think, watching my nephew grow up to be a son I will not have now. What to do? . . . .

One might want to conclude that Samantha is an ableist from the bare fact of her sense of loss. Here, the reasoning would be that, if she weren’t an ableist, then she wouldn’t feel a sense of loss in the first place, so the very fact that she feels a sense of loss by itself shows that she does not properly value disabled people, or that she has prejudices against disabled people, including (now) her own son. Continue reading

The son that Trent can never be, and what to do

Recently a friend of mine, Samantha, wrote to me expressing the following feelings of ambivalence. Samantha had just returned from a trip accompanying her sister to China to help meet and greet a new member of her sister’s family, a beautiful 4-month old baby boy, whom her sister and her husband had just adopted. A few years ago, Samantha’s own 11-year-old son had suffered a brain injury that had him hospitalized for over 6 months, from which he continues to recover, slowly but steadily, though it has become obvious that there are limitations to how complete that recovery will be. Walking and talking, likely finishing school, yes, but many visible cognitive and personality, changes that most would view, and that Samantha views, as definitely for the worse. There’s much that I could write on this, but far better to leave it entirely in Samantha’s own words (with her permission), including the question she has. Samantha writes: Continue reading