The Agony and the Ecstacy of Parenting a Child with Intensive Needs
by Dick Sobsey
This post is for parents of children or adults with MECP2 Duplication Syndrome but it is also for all parents of children or adults with intensive needs. It is about how having a child with intensive needs changes our lives so fundamentally… about how challenging and sometimes painful it makes our lives…. but also how it enriches our lives and makes our lives better in some ways. To read more: http://networkedblogs.com/NMw4h
JOHN DOSSETOR HEALTH ETHICS CENTRE
HEALTH ETHICS SEMINAR AND HEALTH ETHICS WEEK EVENT
Advances in Genetic Testing: Professional and Consumer Perspectives
Dick Sobsey, EdD Professor Emeritus, John Dossetor Health Ethics Centre
& Faculty of Education
Monday, 7 March 2011 12:00—12:45pm Room 1J2.47 Walter MacKenzie Health Sciences Centre
University of Alberta
On October 25, 2008, the What Sorts Network hosted a public symposium to examine, well, philosophy, eugenics, and disability in Alberta and places north. Four speakers were featured on the panel, Dick Sobsey, Simo Vehmas, Martin Tweedale, and Rob Wilson. This event was video recorded and over the next month we will highlight these videos on this blog. Videos will be featured on average twice a week, roughly every Saturday and Wednesday.
To download the full description of the symposium please click here.
We begin this series with the first two parts of the presentation by Dick Sobsey titled “Varieties of Eugenics Experience in the 21st Century.” This presentation amounts to a summary of various kinds of eugenic motivations, justifications, and practices from the 19th century to today with a good collection of anecdotes and trivia. A transcript of both parts follows the fold.
Highlights from part 1 include: shift from religious to scientific view of the world; quality of life; social Darwinism vs. biological capitalism.
Professor Dick Sobsey of the John Dossetor Health Ethics Centre at the University of Alberta has been blogging with the What Sorts Network since the very beginning. One of his areas of particular interest and experience is the Ashley X case. In this post we assemble together all of the posts made by Dick that refer to this case, creating a bridge between earlier articles on the subject and more recent ones that have come out of our series Thinking in Action: The Modern Pursuit of Human Perfection. If you are unfamiliar with the case then refer to the the first blog post highlighted here for additonal information. Continue reading →