Chromosome 18 Registry & Research Society

Thanks to Velvet Martin who has informed us of Chromosome 18, an organization dedicated to the advocacy of individuals with chromosome 18 abnormalities in an effort to help them “overcome the obstacles they face so they might lead happy, healthy and productive lives.”

More information on the organization can be found at their website. And here’s a video introducing the registry.

Vulnerability, trust, and confrontation

[This is the ninth post in a series highlighting a public dialogue held at the University of Alberta on October 23rd, 2008, titled The Modern Pursuit of Human Perfection: Defining Who is Worthy of Life. The dialogue was sponsored by the What Sorts Network, in conjunction with the Canadian Association for Community Living and the Alberta Association for Community Living. For further context, please see the introductory post in the series, which can be found here; Part 1, containing the video clip, was just posted.]

Here is Part 2 of the response to the question about vulnerability, trust, and confrontation. Sam talks about the variation in responses he has experienced from both bioethicists and doctors, and links some of these responses to a continuation of eugenics by other means. Colleen supports this, and brings us back to reactions from one’s own family. Transcript below the video. Continue reading